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Founded in 1998 by COFACE to improve representation for people with disabilities themselves and their families, COFACE-Handicap links together a score of national associations, all members of COFACE. Its member organizations actively take part in the COFACE working group "Inclusive policies for disabled and other dependent persons and their families". COFACE Handicap's mandate is to improve the fulfilment of people with disabilities throughout their entire lives, in particular within the family, which is one of the best places in which they can be assured of lifelong self-fulfilment. COFACE Handicap wishes to give a European dimension to this mission. COFACE-Handicap works actively to see that a policy for family carers is mainstreamed across all policy spheres, and that the family is given a central place in policy on disability. COFACE-Handicap acts to promote the availability of sufficient, appropriate care provision and services, close-to-home and home help services for people in need of care in all Member States. COFACE-Handicap wants resources, assistance and provision harmonized within the EU to avoid the disparities which would deny freedom of movement to families with care-needers. COFACE-Handicap sits on the EU High level group on Disability, tasked to develop the synergies between national policies in the framework of the Un Convention on the Rights of Persons with Disabilities. COFACE-Handicap is a member of the EDF (European Disability Forum).
Key aims
- COFACE-Handicap strongly believes in the need for people with a disability to develop as a whole person within their family, and seeing that their disability and already vulnerable social situation is not made worse.
- COFACE-Handicap works to promote a tax policy which is favourable to family carers by making allowance for the costs of caring for someone with a disability.
- COFACE-Handicap campaigns for all EU countries to implement a real policy to increase the number and quality of jobs, within the subsidiarity principle, in which all working parents, within their abilities, would have access to responsible, decently-paid jobs in order to forestall any risk of exclusion and poverty.
- COFACE-Handicap defends the rights of individual and family carers looking after care-needers whose disability is too severe to enable them ever to work, even if offered appropriate employment.
Priorities
- Splittable parental leave to accommodate the needs of a family providing constant care to a care-needer in the household.
- The wages for such leave periods paid out of social insurance.
- Because of the constant high levels of stress created by caring for people with complex dependency needs, negotiable early retirement opportunities in splittable periods of time after a minimum period of caring.
- Close-to-home workplaces and flexible working hours.
- Dismissal to be unlawful on any grounds other than dereliction of duty.
- Free movement within the EU with preservation of rights to the highest levels of benefit payments.
- The right to a career and advancement.
- EU-level harmonization and convergence to improve services to help achieve the work-care balance.
Best Practices
Charter for Family Carers
The European Charter for Family Carers is the result of a European project on Help the Carers carried out by COFACE-Handicap Members during the years 2005-2006. The aim of this European Charter for Family Carers is to draw attention of National and European Institutions, at all levels, as well as employers and trade unions on the needs of family carers and on the necessary legal recognition of their work.
Help the Carers Project
Several member organisations of COFACE-Handicap came together to work on the help to carers issue. Indeed, it appears urgent that the help provided by families of disabled persons in their daily life be carefully studied at European level. The question of help to carers is, for Europe as well as for associations of disabled persons, of capital importance. With regard to the current advance of the project, the work carried out by the partners consists of a research phase. Two main axes can be distinguished:
- The statement of needs expressed by families on the basis of a common tool namely The guide of the needs of family carers.
- The statement of rights and support measures for family carers implemented by the authorities or organised by associations in several European countries.
The long-term objective of this project is to obtain the official recognition, in Europe, of the status of family carer.
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